Mental Health of People with Amyotrophic Lateral Sclerosis and Potential Interventions

Authors

  • Xiqiao Jiang

DOI:

https://doi.org/10.54097/57004103

Keywords:

Amyotrophic lateral sclerosis, depression, anxiety, mental health.

Abstract

Amyotrophic lateral sclerosis (ALS) is a fatal neurodegenerative ailment. It is the most typical type of motor neuron disease seen in adults. The average survival time is 3 to 5 years after diagnosis. ALS patients might suffer from mental illnesses and distress, as they are conscious that their bodies are gradually deteriorating. It is most likely for them to develop mental illnesses immediately before and after diagnosis, as well as throughout the disease’s early stages. This paper reviews previous researches and studies on common mental illnesses in ALS patients, which are depression and anxiety, as well as their effect on patients’ quality of life. It also discusses methods to improve mental conditions of ALS patients, both for people in the vicinity of patients and the patients themselves.

Downloads

Download data is not yet available.

References

Wijesekera, L.C., Nigel Leigh, P. Amyotrophic lateral sclerosis. Orphanet J Rare Dis, 2009, 4: 3.

Xu, B. N., Lai, Y. Y., Dai, F. L. A qualitative study of the burden experience and needs of spouse caregivers of patients with ALS. Chinese General Practice Nursing, 2019, 17 (35): 4431-4434.

Maiser, S., & Tiryaki, E. Psychiatric Disease in Amyotrophic Lateral Sclerosis. Psychiatric Annals, 2017, 47: 258-262.

Yan, P. F., & Cheng, M. M. The dilemma and coping of ALS patients from the perspective of therapeutic theory. Medicine & Philosophy, 2020, 41 (18): 59-62.

Arthur, K. C., Calvo, A., Price, T. R., Geiger, J. T., Chiò, A., & Traynor, B. J. Projected increase in amyotrophic lateral sclerosis from 2015 to 2040. Nature communications, 2016, 7: 12408.

Theodore C. Larson, Wendy Kaye, Paul Mehta, D. Kevin Horton; Amyotrophic Lateral Sclerosis Mortality in the United States, 2011–2014. Neuroepidemiology 15 August 2018, 51 (1-2): 96–103.

Zhang, P. Y. Research on the needs of patients with ALS from the perspective of social support. Social Work and Management, 2019, 19 (02): 49-56.

Kurt, A., Nijboer, F., Matuz, T. et al. Depression and Anxiety in Individuals with Amyotrophic Lateral Sclerosis. CNS Drugs, 2007, 21: 279-291.

Roos, E., Mariosa, D., Ingre, C., Lundholm, C., Wirdefeldt, K., Roos, P. M., & Fang, F. Depression in amyotrophic lateral sclerosis. Neurology, 2016, 86 (24): 2271–2277.

Montel, S., Albertini, L., Desnuelle, C., & Spitz, E. Evolution of quality of life, mental health, and coping strategies in amyotrophic lateral sclerosis: a pilot study. Journal of palliative medicine, 2012, 15 (11): 1181-1184.

Simmons, Z. Patient-Perceived Outcomes and Quality of Life in ALS. Neurotherapeutics, 2015, 12: 394-402.

Diener, E., & Suh, E. Measuring quality of life: Economic, social, and subjective indicators. Social Indicators Research, 1997, 40 (1-2): 189–216.

Hiroshi Mitsumoto & Maura Del Bene. Improving the quality of life for people with ALS: The challenge ahead, Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders, 2000, 1 (5): 329-336.

Lulé D, Häcker S, Ludolph A, Birbaumer N, Kübler A. Depression and quality of life in patients with amyotrophic lateral sclerosis. Dtsch Arztebl Int. 2008, 105 (23): 397-403.

Stephanie H. Felgoise, Beatrice H. Chakraborty, Elisabeth Bond, Jamie Rodriguez, Barbara A. Bremer, Susan M. Walsh, Eugene C. Lai, Leo McCluskey & Zachary Simmons. Psychological morbidity in ALS: The importance of psychological assessment beyond depression alone, Amyotrophic Lateral Sclerosis, 2010, 11 (4): 351-358.

van Groenestijn, A.C., Kruitwagen-van Reenen, E.T., Visser-Meily, J.M.A. et al. Associations between psychological factors and health-related quality of life and global quality of life in patients with ALS: a systematic review. Health Qual Life Outcomes, 2016, 14: 107.

Downloads

Published

02-03-2024

How to Cite

Jiang, X. (2024). Mental Health of People with Amyotrophic Lateral Sclerosis and Potential Interventions. Journal of Education, Humanities and Social Sciences, 26, 608-612. https://doi.org/10.54097/57004103